Completeness of data from Cuban National Cancer Registry 2015-2019
Keywords:
Cancer Registries, Validity, Data qualityAbstract
Introduction: The quality of cancer registry data is essential for ensuring the accuracy of incidence rates. Validity, one of the quality dimensions, is the proportion of cases with a given characteristic that truly have the attribute.
Objective: to evaluate the validity of the National Cancer Registry data in 2015-2019 according to the province of residence and main locations.
Methods: a descriptive study was conducted using two of the most important indicators of validity: the proportion of cases with histological verification and those reported only by death certificate, by year of diagnosis, province of residence, and main location.
Results: histological verification was 75.3%, with better results in Villa Clara, Guantánamo, and the Special Municipality of Isla de la Juventud. Bronchus and Lung, Colon and Prostate cancer showed values lower than 70 %. Cases reported only by death certificate were 17.8 %, with higher values for Bronchus and Lung, Colon and Prostate, and Ciego de Avila, Las Tunas, and Granma.
Conclusions: the histological verification showed values close to the international standard for the whole period; however, the decrease across all provinces indicated incompleteness. This behavior was worse for Bronchus and Lung, Colon, and Prostate cancer. The percentage of cases reported only by death certificate showed results above international standards for the entire period. These results suggest underreporting of cases, more pronounced in the bronchi and in the lung, Colon, and Prostate.
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